Lupus is a chronic autoimmune disease that can affect any part of the body, including your skin, joints, and organs. Normally, your immune system fights off viruses, bacteria, and germs by creating antibodies. But if you have lupus, your body can’t tell foreign invaders from your own healthy tissue, so it creates autoantibodies that attack and destroy your healthy tissue. This—no surprise!—leads to inflammation, pain, and damage. Lupus symptoms can range from mild to severe, and include fatigue, headaches, painful or swollen joints, and a butterfly-shaped rash across the cheeks and nose. The good news is that both conventional and alternative treatments can help manage lupus. On the conventional side, options include NSAIDs, like ibuprofen and naproxen, corticosteroids, antimalarial drugs, and even chemo. And on the complementary/alternative medicine side, vitamin D, omega-3s, N-acetyl cysteine (NAC), and turmeric may lower disease activity, and cognitive behavioral therapy and other types of counseling can help people with lupus cope with having a chronic, unpredictable disease. It’s important to know that many people have lupus for a long time before they get an official diagnosis because it can be really tough to pin down definitively. The signs and symptoms of lupus vary from one person to the next (remember, lupus can affect literally any part of the body), and it can mirror other disorders, too. To make it even more complicated, there isn’t a single test that can provide a diagnosis. Instead, people often undergo a bunch of tests, including blood, urine, kidney, and liver, as well as imaging tests. Sometimes, a biopsy of your kidneys may even be necessary. We know—it sounds like a lot, in both diagnosing and managing the condition. But on your good days and especially your bad days, remember that you are not alone!
Recent posts about Lupus
This disease "Lupus" alone is horrible, All over body pain and wanting get treated soon. This only happened to me when I was in the extreme heat conditions from this Summer. I'll never work for that man again. I could have died and almost did. the people stayed with starved me for six months and the heat almost took me too.
Hey Lupus Warriors 💜💜💜 I’m Christine and I just joined. I’ve been having a hard time lately because I wasn’t able to get my hydroxychloroquine cuz of the shortage from COVID
I found out last week that my blood clots too easily. (Lupus Anticoagulant test came back positive.) This may be a factor in my chronic migraine and it may be caused by an autoimmune disorder. (Antiphospholipid Syndrome) It is a lot to process and a bit scary but I am glad I am finding some answers! How have you all dealt with this diagnosis grey area?
anyone with low iron, increased inflammatory markers, low kidney enzymes and increased lupus anticoagulant?
So found out yesterday that I may have kidney damage from the Lupus. Waiting on my 24 hour urine test to come back. If it doesn’t come back good I will start chemo, and steroids 😕 This is so depressing. I hate that I have no control of body anymore. I have literally done everything possible to help myself, I’m so done!
Videos about Lupus
Books about Lupus
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book)
When Lupus Throws You For A Loop: A Handbook For The Newly Diagnosed, Lupus Veterans, And For Those Who Love Them
When Lupus Throws You for a Loop is a handbook for those newly diagnosed, lupus veterans, and those who love them. It takes you on a journey to acceptance acknowledging the difficulty of incorporating lupus into your life. You learn ways to communicate effectively, live with unpredictability, imperfection, stress, and loss of control. You learn to read your body’s signals, enhance your relationships regarding intimacy, and increase your positivity and resilience. The book explores the various types of impact lupus has on adolescents and adults as well as the relationships of your significant others. You learn to feel confidant, proud, strong and empowered. You learn what it is to be a true warrior of lupus. One year after being diagnosed with lupus, the author earned a master’s degree in social work. Rather than focus on the negativity of her diagnosis, Donna Oram decided to volunteer and work in the lupus community for twenty-plus years mentoring positive attitudinal changes. The book is interspersed with personal and professional experiences Donna encountered. Her vast knowledge, insight, and empathy for those who have lupus and those who love them guided her desire to help. She has “walked the walk.”
Podcasts about Lupus
Conversations with Lupus - Series
Discover how you can redefine living with Lupus! Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.
Podcast DX: Lupus
On this episode we speak with Marisa Zeppieri about Lupus. Marisa Zeppieri is the Founder/Editor in Chief of LupusChick, in addition to being a decade-long journalist and author, otherwise known as The Lupus Chick. Lupus is a chronic autoimmune and inflammatory disease. In a patient with Lupus, the immune system that was originally designed to protect the body turns against itself. This in turn leads to inflammation, and chronic inflammation over time damages the body’s organs and tissues.
Getting Curious: How Do You Overcome Lupus?
Jonathan sits down with model and actress Mercedes Yvette to talk about America’s Next Top Model, being diagnosed with lupus, and Ayurveda medicine. Plus, Jonathan falls in love with Mercedes’ amazing dog, Porkchop. Check out Mercedes Yvette’s shop, The Gilded Fox! With Jonathan Van Ness and guest, Mercedes Yvette Produced by Christian Dueñas for MaximumFun.org
Team Never Quit: Stacey kozel - Iron Will quadriplegic who copmleted the 2,189 mile Appalachian Trail while battling Lupus
This week TNQ Podcast hosts and former Navy SEALs, Marcus Luttrell and guest-host, Clint Bruce, are honored to welcome the remarkable Stacey “Iron Will” Kozel. Since being diagnosed with Lupus at nineteen, which over time left her paralysed with severely diminished lung function, she’s remarkably completed the entire 2,189 miles of the Appalachian Trail. Listen in as Marcus, Clint, and Wizard catch up to her to discuss her greatest Never Quit story while she’s in the middle of her new mission, the 2,650 mile Pacific Crest Trail from Mexico to Canada. You’re going to be amazed by Stacey’s infectious positivity and joyful nature. Particularly for someone who has battled back, over months and years, from this terrible auto-immune disease which causes the body to attack itself. Then, only to have it return multiple times, each time wiping out all progress and leaving her in a worse condition. You’re going to discover how she credits her tenacious nature developed through sports, the power of humor, and her fascinating perspective on Lupus, for empowering her successful fight to take back control over life and live it to the fullest. Once again this week, the TNQ Podcast team, along with Stacey Kozel, deliver on their mission to bring you some of the world’s most inspiring and impactful #NeverQuit stories. Please do us, and those around you, a favor by spreading the word and sharing this episode with friends and family.
Happier in Hollywood: "No Asshole Policy" With Executive Producer And Lupus Warrior Maurissa Tancharoen
No assholes! Liz and Sarah talk to ABC's Agents of Shield Executive Producer, Maurissa Tancharoen, about her "no asshole policy" -- and about being a high-powered, ass-kicking writer/producer, boss, and mom all while living with Lupus. One way she copes — embracing the Spoon Theory. Then Liz has a Hit this week — reading books to Jack’s class at school — and Sarah has an exercise-related Bomb. Finally, this week's Hollywood Hack will up your parenting game: create a kid bag for the car.
This week on Sickboy: Jeremie and Brian sit down with special guest Lisa to have an open, frank and sometimes offside conversation about living with Lupus! ALSO Taylor is in india getting enemas, so we have our good friend Jenna swing by the studio to join in on the conversation! We talk about everything from werewolf tattoos, to how you probably have lupus, to experiences of sexism from the patient perspective, to how inspirational one can be just by simply getting out of bed.
Medical Medium Podcast: The Lupus Mistake
Lupus is a mystery illness that medical communities mistakenly believe is an autoimmune condition. The truth is that lupus is not the body attacking itself. There is an invader in the body causing symptoms. Listen this Medical Medium Radio Show to learn more about Lupus and this groundbreaking healing information.
Straight A Nursing: The Complexities of Lupus Simplified
Systemic lupus erythematosus (SLE) is a complex illness known as "the great imitator" because its signs/symptoms can mimic so many other diseases. Diagnosis is often a convoluted and lengthy pathway with many patients suffering for years before learning their joint pain, GI symptoms, hair loss and multitude of other symptoms are indeed SLE. In this podcast episode, Nurse Mo breaks down lupus into easy-to-understand chunks that will help you care for these complex patients and crush your nursing school exams. Using Nurse Mo's signature LATTE method, you will learn: What is lupus? What are the causes of lupus? What happens in the pathophysiology of lupus? What are the clinical manifestations of lupus? How is lupus diagnosed? How is lupus treated? What education is crucial for patients with lupus? Looking for more guidance learning about immunity?
Phoenix Helis Podcast: Lupus with Dr. Daniel Lewis
In this podcast episode, we take a detailed look at Lupus. How does it differ from other autoimmune diseases, and how is it diagnosed? Can diet and lifestyle make a difference? What are the best supplements? Is medication always necessary, and how do you make that decision? My guest is integrative rheumatologist Dr. Daniel Lewis. He has over 25 years of experience combining the best that conventional, alternative, and nutritional medicine have to offer.
Healthy Human Revolution: Dr Brooke Goldner Says Goodbye To Lupus
Meet Dr. Brooke Goldner who is a best-selling author, the founder of VeganMedicalDoctor.com, GoodbyeLupus.com. creator of the Hyper-nourishing Healing Protocol for Lupus Recovery, and is the author of Goodbye Lupus and Green Smoothie Recipes to Kickstart Your Health and Healing. Dr. Goldner was diagnosed with Systemic Lupus Nephritis with stage IV kidney disease at 16 years old and made a startling recovery from her disease at 28 years old using her protocol, which uses supermarket foods. She has been symptom-free ever since, with normal lab results and no trace of disease in her body. Now, she educates physicians and patients on how to heal and achieve vibrant health using her protocol and supermarket foods. Dr. Goldner’s Hyper-nourishing Healing Protocol has helped patients with Lupus and a multitude of other diseases. Dr. Goldner has starred in videos and documentaries such as Eating You Alive, Whitewash, The Conspiracy Against Your Health, Goodbye Lupus, and Super Healthy Meals for Your Family. She has appeared on TV news and media outlets such as, The Home & Family Show, RTVi News, Natural News Radio, Health Conspiracy Radio, Wellness Radio, and has been featured on the front cover of Vegan Health & Fitness Magazine. As a keynote speaker and educator, she delivers her message and trainings to audiences and organizations across the nation, including Lupus LA, Health Healing & Happiness, Belsandia, The International Plant-Based Nutrition Conference, The Whole Conference, and California State University. Dr. Goldner graduated with honors from Carnegie Mellon University for her genetic research in Leukemia and neurobiology. She received her M.D. from Temple University School of Medicine, andwas Chief Resident at UCLA-Harbor Residency in Psychiatry. She also holds a certification in Plant-Based Nutrition from Cornell University.
A Little Salty Podcast: Lupus, Whole30 and Weight Loss with Annie
Today on the show we have Annie from @wholepaleoannie here to talk about autoimmune healing through food and her journey with Lupus and weight loss. Annie was diagnosed with Lupus and gives us background on what living with an autoimmune condition was like, what life was like while being obese, and how she got started...
The Lupus Living Podcast - Series
The Lupus Living Podcast will inspire you to keep going through the challenges of living with lupus. Gwen Alexander, your host, was diagnosed with lupus after several emergency room visits and hospital stays. She has had to make many changes to her life since her diagnoses. She has been on a journey of making changes to her life that will help her still live a full life with lupus. Follow the podcast to learn how to navigate the flare ups of living with lupus. Disclaimer: Gwen is not a medical doctor, nurse or health professional. You should talk to your doctor, nurse or health professional before you make any changes to your lifestyle that may affect you. The information provided in this podcast is for informational purposes only.
- Centers for Disease Control and Prevention. Diagnosing Lupus. Centers for Disease Control and Prevention. Diagnosing Lupus.
- Current Rheumatology Reports. Updated review of complementary and alternative medicine treatments for systemic lupus erythematosus. Current Rheumatology Reports. Updated review of complementary and alternative medicine treatments for systemic lupus erythematosus.
- Lancet. Treatment of severe systemic lupus erythematosus with high-dose chemotherapy and haemopoieetic stem-cell transplantation. Lancet. Treatment of severe systemic lupus erythematosus with high-dose chemotherapy and haemopoieetic stem-cell transplantation.
- Lupus. Treating lupus patients with antimalarials: analysis of safety profile in a single-center cohort. Lupus. Treating lupus patients with antimalarials: analysis of safety profile in a single-center cohort.
- Lupus Foundation of America. Common symptoms of lupus. Lupus Foundation of America. Common symptoms of lupus.
- Lupus Foundation of America. What is lupus?. Lupus Foundation of America. What is lupus?.