Lupus is a chronic autoimmune disease that can affect any part of the body, including your skin, joints, and organs. Normally, your immune system fights off viruses, bacteria, and germs by creating antibodies. But if you have lupus, your body can’t tell foreign invaders from your own healthy tissue, so it creates autoantibodies that attack and destroy your healthy tissue. This—no surprise!—leads to inflammation, pain, and damage. Lupus symptoms can range from mild to severe, and include fatigue, headaches, painful or swollen joints, and a butterfly-shaped rash across the cheeks and nose. The good news is that both conventional and alternative treatments can help manage lupus. On the conventional side, options include NSAIDs, like ibuprofen and naproxen, corticosteroids, antimalarial drugs, and even chemo. And on the complementary/alternative medicine side, vitamin D, omega-3s, N-acetyl cysteine (NAC), and turmeric may lower disease activity, and cognitive behavioral therapy and other types of counseling can help people with lupus cope with having a chronic, unpredictable disease. It’s important to know that many people have lupus for a long time before they get an official diagnosis because it can be really tough to pin down definitively. The signs and symptoms of lupus vary from one person to the next (remember, lupus can affect literally any part of the body), and it can mirror other disorders, too. To make it even more complicated, there isn’t a single test that can provide a diagnosis. Instead, people often undergo a bunch of tests, including blood, urine, kidney, and liver, as well as imaging tests. Sometimes, a biopsy of your kidneys may even be necessary. We know—it sounds like a lot, in both diagnosing and managing the condition. But on your good days and especially your bad days, remember that you are not alone!
Recent posts about Lupus
should i call my rhuemetology’s this or my urologist if i’ve been seeing blood in my iron for the past week and i have been diagnosed with lupus?
does anyone with lupus or hishimoto (or both) struggle with weight gain? I’ve gained so much weight since my lupus diagnosis and it keeps going up and I’m really trying hard to lose it but nothing is working. losing motivation lol. any advice ?
hi! this is my first post on here so not really sure how this works. I was diagnosed with lupus last year, in addition to having hishimotothyroiditis and have been gaining weight like crazy. I’ve been exercising more but nothing seems to be working. I have a feeling I might have PCOS. does anyone have PCOS and another autoimmune disorder ?
i have SLE (lupus) and autoimmune disorder. i have to get solumedrol ivs three times a week. but since my labs haven't been good they also added prednisone an oral steroid. ive noticed so much weight gain especially on my face. i know it's typical but is there anything i can do to calm it down lol. I've been doing facial exersices. any suggestions?
i have an ulcer in my nose(lupus). if i put some of the topical steroid that i use for my rashes on a q-tip and apply it in my nose, do you think it would go away? i’ve had it for 3 months
Videos about Lupus
Books about Lupus
The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book)
When Lupus Throws You For A Loop: A Handbook For The Newly Diagnosed, Lupus Veterans, And For Those Who Love Them
When Lupus Throws You for a Loop is a handbook for those newly diagnosed, lupus veterans, and those who love them. It takes you on a journey to acceptance acknowledging the difficulty of incorporating lupus into your life. You learn ways to communicate effectively, live with unpredictability, imperfection, stress, and loss of control. You learn to read your body’s signals, enhance your relationships regarding intimacy, and increase your positivity and resilience. The book explores the various types of impact lupus has on adolescents and adults as well as the relationships of your significant others. You learn to feel confidant, proud, strong and empowered. You learn what it is to be a true warrior of lupus. One year after being diagnosed with lupus, the author earned a master’s degree in social work. Rather than focus on the negativity of her diagnosis, Donna Oram decided to volunteer and work in the lupus community for twenty-plus years mentoring positive attitudinal changes. The book is interspersed with personal and professional experiences Donna encountered. Her vast knowledge, insight, and empathy for those who have lupus and those who love them guided her desire to help. She has “walked the walk.”
Podcasts about Lupus
Conversations with Lupus - Series
Discover how you can redefine living with Lupus! Hetlena Johnson is a highly recognized author, speaker, and trainer devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life’s challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.
Podcast DX: Lupus
On this episode we speak with Marisa Zeppieri about Lupus. Marisa Zeppieri is the Founder/Editor in Chief of LupusChick, in addition to being a decade-long journalist and author, otherwise known as The Lupus Chick. Lupus is a chronic autoimmune and inflammatory disease. In a patient with Lupus, the immune system that was originally designed to protect the body turns against itself. This in turn leads to inflammation, and chronic inflammation over time damages the body’s organs and tissues.
Getting Curious: How Do You Overcome Lupus?
Jonathan sits down with model and actress Mercedes Yvette to talk about America’s Next Top Model, being diagnosed with lupus, and Ayurveda medicine. Plus, Jonathan falls in love with Mercedes’ amazing dog, Porkchop. Check out Mercedes Yvette’s shop, The Gilded Fox! With Jonathan Van Ness and guest, Mercedes Yvette Produced by Christian Dueñas for MaximumFun.org
Team Never Quit: Stacey kozel - Iron Will quadriplegic who copmleted the 2,189 mile Appalachian Trail while battling Lupus
This week TNQ Podcast hosts and former Navy SEALs, Marcus Luttrell and guest-host, Clint Bruce, are honored to welcome the remarkable Stacey “Iron Will” Kozel. Since being diagnosed with Lupus at nineteen, which over time left her paralysed with severely diminished lung function, she’s remarkably completed the entire 2,189 miles of the Appalachian Trail. Listen in as Marcus, Clint, and Wizard catch up to her to discuss her greatest Never Quit story while she’s in the middle of her new mission, the 2,650 mile Pacific Crest Trail from Mexico to Canada. You’re going to be amazed by Stacey’s infectious positivity and joyful nature. Particularly for someone who has battled back, over months and years, from this terrible auto-immune disease which causes the body to attack itself. Then, only to have it return multiple times, each time wiping out all progress and leaving her in a worse condition. You’re going to discover how she credits her tenacious nature developed through sports, the power of humor, and her fascinating perspective on Lupus, for empowering her successful fight to take back control over life and live it to the fullest. Once again this week, the TNQ Podcast team, along with Stacey Kozel, deliver on their mission to bring you some of the world’s most inspiring and impactful #NeverQuit stories. Please do us, and those around you, a favor by spreading the word and sharing this episode with friends and family.
- Centers for Disease Control and Prevention. Diagnosing Lupus. Centers for Disease Control and Prevention. Diagnosing Lupus.
- Current Rheumatology Reports. Updated review of complementary and alternative medicine treatments for systemic lupus erythematosus. Current Rheumatology Reports. Updated review of complementary and alternative medicine treatments for systemic lupus erythematosus.
- Lancet. Treatment of severe systemic lupus erythematosus with high-dose chemotherapy and haemopoieetic stem-cell transplantation. Lancet. Treatment of severe systemic lupus erythematosus with high-dose chemotherapy and haemopoieetic stem-cell transplantation.
- Lupus. Treating lupus patients with antimalarials: analysis of safety profile in a single-center cohort. Lupus. Treating lupus patients with antimalarials: analysis of safety profile in a single-center cohort.
- Lupus Foundation of America. Common symptoms of lupus. Lupus Foundation of America. Common symptoms of lupus.
- Lupus Foundation of America. What is lupus?. Lupus Foundation of America. What is lupus?.